Endometriosis Awareness Month

I have endometriosis.     

Endometriosis sucks.    Sometimes I like to imagine the disease as that machine created by the six-fingered Count Rugen in The Princess Bride – you know, the one where it uses a water wheel to suck years of your life away through pain.   For eight or so days a month, Prince Humperdinck storms into my uterus every day and cranks that thing up to fifty.    You remember Westley’s screams?   Yeah, I recognize those.   They’re the ones I try to stifle with my heating pad.     

Worse, endometriosis is, in my personal experience, minimized by health professionals and dismissed by many family members as a psychological attention-seeking gesture.   I’ve been through four ob/gyns in the past three years, because the first three insisted I was “exaggerating” or “making up” the pain — because I only saw them when I was not in pain, since the pain is so bad when it hits that I can’t drive to a doctor.   My sister has told me that I “just need to change [my] perspective”.   They don’t see what I experience:  crawling to the bathroom to throw up from the pain because I can’t stand up; going to bed at 8pm, completely exhausted; physically, emotionally, mentally drained from fighting my uterus; crying over the children that I will never have. 

Endometriosis isn’t just “period pain”, and it isn’t “just” infertility.    Unlike breast cancer, endometriosis is a woman’s disease that receives very little research and funding.   There are only a handful of endometriosis specialists in the entire United States.   And yet, millions of women have this disease.   

It’s time for us all to have a conversation on why we let this disease continue to slowly suck our lives away.  

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3 Responses to Endometriosis Awareness Month

  1. pugrunaholic says:

    I couldn’t agree with you more! ❤

  2. Daryl says:

    I didn’t know much of anything about endometriosis before joining this community. Not that I claim to know a lot now. It’s definitely not a well-publicized disease. I’m sorry you’ve had to deal with everyone else’s ignorance on the subject, in addition to the days and days of pain. I hope you’re getting better care now, and I’m glad you’ve found an outlet for your frustration as well as for advocacy.

  3. I am so sad that people still don’t appreciate the struggles we go through with endo. I’ve also had doctors questioning me on relatively “good” days, but my endo pain has no pattern so I have literally no idea when I’ll be having a bad day. Even getting to see a doctor takes so long that I will drag myself there even if I feel like death. Keep fighting! 🙂

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